Thank you for this. My son is 2 and legally blind, so needless to say we have no life outside of him for now, but he is a joy. I would trade none of this for nothing.
Often I feel like I will never again be able to have a life, read a book, finish a project, have an idea. I know that it gets better and that I should cherish the moments we have while he is so young (and I do), but it’s hard to see more than a foot in front of you, so to speak. Thanks.
Our son is profoundly autistic and will probably need care all his life.
He's 4 now and I wouldn't change him for the world, but it's taken 4 years to really come to terms with his condition and our ongoing role as parents and carers.
Our son has a severe intellectual disability, non-verbal, and depends on us for all his daily needs, no matter how small they are. He's 8 now, and it took us a while to come to terms with his condition as well.
It's getting a little better as he gets support from his school for developing basic skills. And he's such a joy and a charming little fella. I'm grateful for having him, as he taught me to see matters in their right perspective, and he taught me what unconditional love looks like.
I still get some time after he (and his normal 13 year old sister) goes to sleep to code on some hobby projects (right now I'm trying to write an OS from scratch and read half-way through the Intel manuals). It's not consistent, and life can be interrupted by trips to the ER every few months (he's asthmatic too). But we still accept it and make the best out of it.
I always thought it would be incredibly hard to have a child with difficulties like yours. I teach a gymnastics club once a week and have an autistic kid there and instead of being problem she is one of the most rewarding ones to teach (in the limited time I have to spend with her). I’m not in any way a good teacher, but I’m learning a lot from her and actually get a lot out of it myself. I’m sure it’s much harder full time, but in the end it’s just the same challenge all parents have, to try and prepare your kids for life and hopefully give them a happy life.
It varies a lot from child to child and a lot depends on the environment. Our 5yo son, for example, finally starts speaking in 2+ words sentences and counts up to 20 after two years of therapy. Before we started the therapy we didn't think he could ever get even to this point.
That is tough. My mom was a speech language pathologist and I grew up around kids in therapy (and had fun learning sign with the deaf kids). I hope his progress is rewarding now that you can see some results. Going through it, for me, is so hard to appreciate the small improvements. I can only image two full years. I hope you continue to see progress!
That’s great to hear. Believe it or not, visual impairment usually leads to delay in speech and other development, so I get a sense of where you’re coming from. All the best to you guys.
Hi there, as a father of autistic son, I can feel You. But hang in there, your son is young enough for some interventional therapy. We pursued floor time therapy which is play based and it has helped our son since. OT and speech can go a long way in helping your child express them better and navigate their life better. If you do decide to send your child to a public school, make sure they can supper your child with special needs education program. They initially need a lot more of your attention but depending on now how their cognitive functions turn out they can go on to become more independent. Good luck, and if you need someone to talk to my contact info is in my profile.
I'm sure you are doing everything for him, and I've ran into an autism scare for 7-8 months with my daughter and I've read quite a lot(intervention options and books for parents).
Anyway, the guy hosting a 3 day course/workshop described and showed proof of his son intensive ABA intervention which started age 5 to 7 which culminated to his son making a full "recovery" -- I know this only applies to 50% of the cases.
They call them seasons of life and you are in a season, I was there, I have 4 children and had two in diapers. I could not see past the next day sometimes. But it does get better, when they cross the 7 year old threshold they become a lot more independent. When they cross the 10 year threshold you hit another season where they pretty much take care of themselves. When they hit teens your involvement becomes nothing more than soft guidance. They are focused on their friends and building their social skills. They still like you but they start to exert some of their first steps into adulthood. You will move thru these seasons and they all have the good with the bad. But I remember the stress of little-ones. I remember seeing the youngest swim for the first time, and I realized right then and there that I felt like I caught my breath for the first time in years. I lost a nephew to a pool drowning so it was one of my big stresses when they where that little.
Often I feel like I will never again be able to have a life, read a book, finish a project, have an idea. I know that it gets better and that I should cherish the moments we have while he is so young (and I do), but it’s hard to see more than a foot in front of you, so to speak. Thanks.