Our son has a severe intellectual disability, non-verbal, and depends on us for all his daily needs, no matter how small they are. He's 8 now, and it took us a while to come to terms with his condition as well.
It's getting a little better as he gets support from his school for developing basic skills. And he's such a joy and a charming little fella. I'm grateful for having him, as he taught me to see matters in their right perspective, and he taught me what unconditional love looks like.
I still get some time after he (and his normal 13 year old sister) goes to sleep to code on some hobby projects (right now I'm trying to write an OS from scratch and read half-way through the Intel manuals). It's not consistent, and life can be interrupted by trips to the ER every few months (he's asthmatic too). But we still accept it and make the best out of it.
It's getting a little better as he gets support from his school for developing basic skills. And he's such a joy and a charming little fella. I'm grateful for having him, as he taught me to see matters in their right perspective, and he taught me what unconditional love looks like.
I still get some time after he (and his normal 13 year old sister) goes to sleep to code on some hobby projects (right now I'm trying to write an OS from scratch and read half-way through the Intel manuals). It's not consistent, and life can be interrupted by trips to the ER every few months (he's asthmatic too). But we still accept it and make the best out of it.
Hang in there, and know that you're not alone.