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Jake was strong. He was so prolific throughout his death process. Truly an inspration, especially to those dying of this disease.

It is a terrible disease. I would not wish it on my worst enemy. The horror, pain and lethargy that you experience... Having chunks of your body cut out periodically... Slowly dying from the inside out... Watching your loved ones fall apart... I can barely put into words how difficult it is. If you know someone who has this disease, reach out to them, they need love and support.

Rest in peace Jake. You will be missed. But more importantly, you will be remembered.




And yet… an invaluable opportunity to say goodbye and "get affairs in order". The suffering for all affected, I completely agree, I would not want anyone to go through. But compared to a recent bereavement I experienced where this person just did not come home, having died suddenly, unexpectedly, tragically alone and unseen. Would that I could choose, I think I would like the notice, despite the downsides. Love to all dealing with grief.




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