Not once did I propose changing the economic model. Only that we should give consenting, perhaps eager, terminal patients more options in participating in research and access to promising new drugs. It's unfair that there's a decade of waiting when lives are so quickly and pointlessly lost.
You're alive as a conscious participant in the universe just once, and then there's an infinity of nothing. You should have the option to try to keep that spark alive. If a chance, even fleeting, lies behind a glass door, that's cruel.
If you did that, there would be a rush of (not necessarily) terminal patients signing up and mostly dieing anyways (hopefully of their terminal illnesses)
There would be, as expected, a large contingent of patients who were poor, alone and maybe not very terminal. The very same reason which lead to the creation of ethics committes
You're alive as a conscious participant in the universe just once, and then there's an infinity of nothing. You should have the option to try to keep that spark alive. If a chance, even fleeting, lies behind a glass door, that's cruel.