Interesting note about Trikafta and other advancements in cystic fibrosis: the Make a Wish Foundation announced that children with CF now no longer automatically qualify for their program due to the advancements in care.
My friend that had CF was eligible. He was asked by the foundation what he wanted when he was 5-6 years old. He said he wanted to go Zorbing in Australia.
They dragged it until he was 18. He always jokingly said "make a wish foundation is waiting, hoping I'll die".
He finally got to go Zorbing when he was 19. Passed away a few years later.
Not surprised the foundation jumped on Trikafta to remove eligibility.
> Recently, Make-A-Wish announced that children with CF would no longer automatically be eligible for the program, because “life-changing advances” had radically improved the outlook for them.
I know this is a long piece, but half the comments in this thread seem like people didn't even bother to read it before commenting...
https://wish.org/cf-update