You don't say what your disability is (or how it impacts your ability to work), so it's hard to be specific. But my general advice would be just to talk to more companies. Not every company will be open to this, but some will and you just need to find those companies. Get in contact with companies that are hiring for roles that require the kind of skills you have even if the working arrangements they're advertising aren't what you'd want.
This. Unfortunately, there are a lot of people with disabilities who fall through the cracks because they’re able to work, just not to the artificial availability (and suffering) standard required by the modern labor market. There’s a difference between being able to do useful work and being able to survive the nightmare of a modern-day corporate job where the work demands themselves are low but the emotional labor is enough to take down even people without disabilities, given enough time.
And SSDI is really badly set up, as other posters have noted.
It really is. I’m able to work with ADA accommodations, but finding a job I can manage is difficult.
It takes me 3~6 months for me to find a job each time I’m out of work.
Finding a specialist to manage the medical side of my disability is similar.
Through fortunate circumstances (and inheritance), I have successful career and enough energy left over to have some kind of life.
If I lived in Europe, the amount of sick and vacation time would allow me to actually heal between episodes. I live in the US, so I’m in a constant state of near burn-out.
