I'm a skeptic, as anyone who has CF should be. As I said, I am happy for you, but you need to be very careful when making claims as you do since lives are at stake. If you are going to post information that CF patients might act upon it is your responsibility to put it into appropriate context, try to disprove it yourself, and be open to alternative theories as to why your approach worked other than that you have cured your CF through consuming sea salt and tonic water.
The history of CF is full of stories like yours where people seem to be onto something only to find out that it was circumstantial or not scalable to the rest of the CF population. This is still a very mysterious disease. My point is that a large part of the reason you might not be taken seriously is due to your tone, your apparent skepticism of western medicine, and your lack of expertise on the fields you are making claims about.
If you do not want to try to use the information you have to help others, so be it. But if you do, posting on health lists and arguing over the internet is not the way to do it. The way to do it is to educate yourself enough that you can hold a real discussion with medical researchers, and find medical researchers (or become one yourself) who would be willing to test your claims empirically. You've positioned yourself as a champion against the establishment, and this is not the way to actually get anything meaningful accomplished. Posting anecdotal evidence, contradictory claims, and lots of random speculations about the effects of various foods and dietary changes without accurate measurement and study does little good towards this end, if the goal is to help the wider CF community, despite your intentions to be helpful.
I would be very concerned if you were not skeptical. I have no issue with skepticism. My experience has been that individuals new to the CF community or individuals who have long pursued alternative approaches are the most able to understand and act on the information. I have come to believe a more information dense delivery mechanism would be helpful. I don't personally see any reason to believe that normal research channels are the way to go with this. I like being helpful. I just don't feel obligated to cram my views down anyone's throat and most members of the CF community have made it abundantly clear that they have no interest in what I am doing. I see no reason to either fight with people or martyr myself. The information is there if someone is interested and has already helped some people. So I see no reason to defer to your opinion that sharing it online is not the way to go.
The history of CF is full of stories like yours where people seem to be onto something only to find out that it was circumstantial or not scalable to the rest of the CF population. This is still a very mysterious disease. My point is that a large part of the reason you might not be taken seriously is due to your tone, your apparent skepticism of western medicine, and your lack of expertise on the fields you are making claims about.
If you do not want to try to use the information you have to help others, so be it. But if you do, posting on health lists and arguing over the internet is not the way to do it. The way to do it is to educate yourself enough that you can hold a real discussion with medical researchers, and find medical researchers (or become one yourself) who would be willing to test your claims empirically. You've positioned yourself as a champion against the establishment, and this is not the way to actually get anything meaningful accomplished. Posting anecdotal evidence, contradictory claims, and lots of random speculations about the effects of various foods and dietary changes without accurate measurement and study does little good towards this end, if the goal is to help the wider CF community, despite your intentions to be helpful.