Hacker News new | past | comments | ask | show | jobs | submit login

> The US funds the manufacture and research on drugs for rare diseases but only while the drug is under patent. Once the drug is out of patent then there is no regulation. These are called "orphan drugs."

This is exactly the opposite of the case. The FDA wanted to encourage manufacturers to conduct new safety and efficacy trials on drugs (that can be out of patent) to treat 'orphan conditions', which are conditions that exist in rare populations, which could be currently off-label indications. Because it is outside of the scope of the FDA, the FDA cannot incentivise you to help this class of underprivileged people by extending your patent monopoly. What it can do, is to give you the exclusive rights to advertise your drug, which, in the US, is a de facto monopoly. Of course, this regulation is highly abused.

https://www.spectrumnews.org/news/drugmakers-manipulate-orph...




Lobbyists are a lot like genies. You ask for something that sounds perfectly reasonable, and when you get it you wish you'd never met them.


Why isn't there a list with alternatives distributed, say, by the federal or local governments ?


Because it would undercut profits.


Because that would literally be against the spirit of the law. Moreover, why would anyone make an alternative when it will not be advertised much?




Consider applying for YC's Spring batch! Applications are open till Feb 11.

Guidelines | FAQ | Lists | API | Security | Legal | Apply to YC | Contact

Search: